No parent ever wants to see their child like this. This picture is of the geekson, at just 2 weeks old, in the High Dependency Unit of our local hospital. He spent a total of 5 days in hospital, including 24 hours in the HDU with nil by mouth. Babies don’t understand nil by mouth. It was one of the most traumatic times I’ve ever experienced. I stayed with him almost constantly, apart from a few hours each day when the geekdaddy relieved me so I could get home, sort out a few things, maybe have a shower, and then get back in. the doctors never found out exactly what it was. He had a lumbar puncture to rule out meningitis, all sorts of tests for all kinds of bacterial infections, and at the end it was diagnosed as a viral gastroenteritis. The severity of the situation never really hit us at the time, but I must confess to having a few wobbly moments when I got home with him.
A couple of weeks ago the headline article in our freebie local paper was the story of a mum who lives not far from me whose son Charlie had sadly not been so fortunate, and who had died of meningitis at the age of just three months. It was of particular interest to me as the article included a link to her blog, and I was interested to learn of a local blogger. I cannot begin to imagine how she feels, and I admire her greatly for blogging about it. She wants to raise awareness of the symptoms of meningitis, in an attempt to prevent what happened to her happening to any other mother. You can read her story at her blog – http://charliecheekychops.blogspot.com
The geekdaddy and I were complacent. We were second time parents, we thought we knew everything. The geekson had been a dream baby for two weeks, and then had a grotty day. He was hard to settle, grumpy, cried out when I sat him up to burp him after every feed and the only way we could settle him for his naps was on his tummy. This should have rung warning bells for us, but it didn’t! We just wrote it off as him feeling a bit rough! In fact, it wasn’t until about 8pm that evening that the geekdaddy said ”I suppose we could try taking his temperature” – neither of us had thought to do that until then!
We took his temperature, and it was 40°C. That’s high. So then we wondered what to do. It was the evening, our doctor’s was closed. I knew that we shouldn’t give Calpol to a 2 week old, we didn’t know what else to do. So we called NHS direct. The lady talked us through checking a few things, looking for spots (there were none), stripping him down to his nappy in order to bring his temperature down. We exhausted her checklist, his temperature began to drop, and so she suggested we call our out of hours doctor. Which we did. We spoke to the nurse, checked the same things all over again, and as his temperature was continuing to drop the conversation ended with a “well, you could bring him down to A&E if you’re worried about him”. Things didn’t seem that urgent, so we made the decision to all go to bed, get some sleep, and take him to the doctor’s in the morning if he continued to be poorly.
We all slept fitfully. the following morning his temperature was up again, and he was crying when I moved him, so we got an appointment at the local doctor’s. the doctor examined him, could tell his temperature was still up, but couldn’t see any sign of infection, so sent us straight down to the children’s ward of our local hospital.
Through all of this, the geekson was drinking his milk and filling his nappy as well as he ever had done. This is probably why we didn’t think things were that serious, and it was the first question any medical professional asked us. In fact he was due for a feed when we arrived at the ward, so they held off doing his booking in checks until he’d drunk. And it was only after that, when they were checking him and prepping him for the lumbar puncture, that he deteriorated and had to be wired up to machines left, right and centre, and took up residence in the HDU.
After our experiences, I was thumbing through one of my baby books – Jo Frost’s Confident Baby Care, and I found the following information about temperature in babies. I’m reproducing it here because I don’t want other parents to be as complacent as we were:
Call the doctor if his temperature is higher than 100.4°F (38°C) if he’s under three months, 101°F (38.3°C) if he’s between three and six months, 103°F (39.5°C) if he’s six months or older… If you see a temperature that’s higher than 104°F (40°C) in the first three months, don’t hesitate – take him straight to hospital.
We were lucky. We delayed when we shouldn’t have done, but thankfully the geekson didn’t have meningitis. My thoughts go out to Charlie’s Mum, and anyone else who has lost a baby to this horrible illness. We knew we should be looking for spots that didn’t fadeunder pressure from a glass, but what we didn’t know was that the first symptoms of meningitis could simply be a grumpy baby with a temperature.

























{ 17 comments… read them below or add one }
It’s posts like this that really make you think. I think that with me as a first time mum, I’m a lot more complacent than others in my position – mainly cuz I have my mum who is a health visitor on the other end of the phone.
But this really makes me think. What would I have done in your situation? I wouldn’t have done anything any differently than you did. Don’t beat yourself up about it.
Your little boy is obviously a little trooper. Tough cookie.
My thoughts go out to Charlie’s family – I can’t imagine what they must be going through.
Fabulous post and really informative too x
Glad you liked the post
I had a narrow escape from meningitis 40 years ago at age 6 months. Fortunately for me, my parents were sufficiently cautious to take me in to the hospital, which was good as otherwise I’d apparently not have lasted the night. Also, the GP was sufficiently on the ball to recognise things. I was apparently in the hospital 6 months and barely made it through…
Now, we have all kids vaccinated against meningitis, and are familiar wth all the danger signs. Of course you can’t have the vaccine before 6months…
The rule I’ve always heard is — temperature >40C, straight to the doctor/hospital, whatever the time of day or night.
One benefit of having survived meningitis is that the virus remains dormant in my brain fluid — so if I’m ever attacked by zombie hordes, I can be comforted by knowing that any who eat my brain will catch something nasty…!
Thanks for sharing your story Steve, and when the zombie apocalypse comes I’m sending them all your way!!
So glad he’s ok, you must have been terrified. I saw this website from my blog stats and was intrigued so came to have a look. Thank you for sharing the link
Katy (Charlie’s Mummy)
Thank you so much for stopping by Katy. So glad to be able to send some traffic your way and do my own little bit to raise awareness of your cause.
So glad your baby is OK now, what a frightening time for you. Emma
FYI when I try to follow you using the Networked Blogs widget, it says your blog doesn’t exist.
Thanks Lorry – I think I’ve fixed that now, could you try again please?
A friend of mine lost his son to meningitis a couple of years ago. They actually acted quickly but the doctor didn’t suspect meningitis. My thoughts go to Charlies mum, my friend and all those who have been through this.
Your post is a powerful reminder of what we need to do in these situations. It’s easy to be complacent just because you never believe it could happen I suppose. But thank you for this reminder and for the very useful information. And I’m very glad you’re baby is well.
I saw a link to this from one of your other posts and came to it as we’ve had our 8 month old in A and E twice in two weeks with a high temperature, both times its been nothing serious but its so scary when they are so hot and so little. I’m not usually one to overreact, but you just can’t take a chance can you?
I’m so glad your son was ok. I can’t imagine how scary it must have been.
I caught the picture when flicking through posts. I know it’s old but I remember only too well dear son, child number 2, being admitted to hospital with a temp of 40, refusing feeds and screaming like you never want to hear at 7 weeks old. We’re told variously (depending whether hospital or gp) either viral infection or early viral meningitis. A week sleeping on a put me up, dashing home for a couple of hours when hubby came to relieve me and daughter was at nursery to shower and sleep briefly in my own bed was enough to make me a neurotic mum. Before that nothing was that serious and daughter was rarely ill. Son on the other hand gets most things going. Thankfully we have wonderful gp’s and np’s for whom nothing is trivial when it concerns the little ones.
Hi i was looking for other people who had gone through the same things as we have with our baby girl, The first story that we read was like i was telling my story…
My baby started getting high temps of over 39C when she was 3 and a half months she was also getting stiffness in her neck so when she would wake for a feed she was stuck with her head to one side and had a high temp. We rushed her to the hosiptal were they did a chest xray could not find anything and said that it was viral and sent us home. She was ok for about 1 week then the same so i went to the gp He said that he could not find anything all was clear he said, But if you are worried as i was he stated that he would give me a script in case if she does not start to inprove to start it.
That night she was no better so i started the Ab’s that was no help she stayed the same so the nxt morrning i rang the GP again and went back to see him he had now seen her with a temp of 39.5C and her neck was stiff and said go to A&E so off we went.
We got there and with a temp of 39.5 she is atill a happy baby so they were not that concerend we waited at the hosiptal for 5 hours then the doctor put in a drip and we had blood tests and another chest x ray as they thought that she had nomina.
They said after a 4 night stay that we could go home because they were treating her for nomina with Ab’s.We were home for 3 weeks and it happened again so i rang the GP and was going down to see him as i thought this is getting silly no one can give me answers, So he saw us and said he could not find anything wrong with her,i stated that i wanted to go and see a pead’s doctor and i wanted a refural right then so when i got home i rang and the receptionest got us in to see a pref that day he was very worried when he saw my baby.
The next thing i knew was she was haveing a lumber puncher a drip put in and started on very strong Ab’s it was the worst feeling in my life.We stayed in hospital all there tests came back negitive for meningitis. so they sent us home again thinking that it is a viral infection which they can not treat.
We were back 2 and a half weeks later with the same again…….. by this stage i have had no sleep for weeks i have a 3 and a half year old as well so i have been away from her too so my heart is breaking and i am getting verry worried i lost my temper a bit so they decided after another stay in hosiptal that we could go home on Ab’s again. This dose was for a month 3.5ml 4 times a day. During this month she had temps but they were not as bad as she had been having so the DR said that he thinks the reason why she was having temps on the AB’S was because she had picked up a cold.
Then the AB’S had finished for 4 days and she became unwell again this time it was on new year so back to the hospital we went were she had all the tests done again and all came back negtive so they said this time that she is not going to put her on AB’S as they dont think that she has a Backtural infection but just to wait and see how we go, She now has a temp which is reaching over 39.5 i am at my whits end with this has any one heard of anything like this before???
Thanks bree.
Hi, thanks for visiting and sharing your story.
What a really scary time you must be having. I wish I could offer advice, but all I can say is that you’re doing all the right stuff. Trust your instincts and keep talking to the medical people to get their help.
It must be a very worrying time for you, and I really sympathise. I hope you get some answers soon.
Just read your article, scary. I am a mum with 2 girls. My first handles illness extremely well like me so I did what you did. My lil 20 month old got a cold and coped really well until yesterday where out the blue she became whingy so I gave her a bottle and put her in bed for her sleep. After an hour she screams at a pitch I’ve not heard her reach and she was boiling hot. Calpol did the trick and brought her temp down so at my bedtime I went to bed not thinking to check!!! Was woken at 3am by the same high pitch scream, panic panic panic. She has a throat infection and worse cold than what I thought. She is still running high temp but stable luckily, on hourly watch tonight x
Sounds very worrying – I hope she gets better soon, and please take her to your doctor as soon as you can!
Hello, just wanted to say thanks for sharing your story. I came across it while searching for info about high temp in babies as my 3month old has a temp again today. We’ve been through a similarly stressful situation with him, although until now high temperature wasn’t one of his problems.
He’s my 3rd baby and we’ve always been quite laid back but when he developed breathing problems at a week old we were concerned and rang NHS24 who sent out a doc & ambulance who diagnosed bronchioloitis but didn’t seem too worried so we stayed at home – 3 days later he ended up being ventilated and transferred by air to a hospital 200 miles away. He spent a week in PICU there (over Christmas!) before being moved back to our local hospital. We took him home on hogmanay after 13 days in hospital. Going through something like that changes your outlook completely and now I am constantly worried about him. He’s had 2 further admissions, the latest one last week with wheezing and high temp and now today his temp is up again – it is so exhausting! (Our story is here: http://wp.me/p1HXmZ-1g if you want to know more.)
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